It’s been awhile since I’ve shared an update, so for the sake of any curious followers, I thought I’d share a bit:
For those who don’t know, I have had epilepsy for about 10 years. About a year and a half ago, it was decided we’d go through the tests necessary to move forward with getting epilepsy surgery. (Where they remove the part of my brain where seizures are starting) I ended up getting a Neuropace instead, which is a pacemaker of sorts for the brain that “zaps” (painlessly, of course ;)) seizures–mainly because it seemed safer.
Inconveniently, I was the surgeon’s first lucky patient to have a CSF leak, two infections, 18 weeks of antibiotics, and eventually, after 6 different operations, the Neuropace removed. (Crazy year and a half!) It’s been a challenging yet learning experience, to say the least.
Today, a test was done that showed the infections are gone, (YES!) and we can start working towards the original plan: to get the “focus” removed. For the next three months, I will be going to PT and basically doing everything possible to get well prepared for surgery before redoing the prep tests. (Surgeries, lack of exercise, and all the antibiotics have set me back a bit)
In a way, things seem pretty clear ahead. But I feel like one of the key things I’ve learned over the last year and a half is not to put my hope in things like surgery, doctors, and my own ideas. There’s still a possibility of the surgery not working out like we want. I may be here today and then gone tomorrow–and that’s okay.
I want my hope to be in Christ who cannot be separated from me and in eternity with Him that cannot be taken away.
“In Christ alone my hope is found,
He is my light, my strength, my song.
This cornerstone, this solid ground,
Firm through the fiercest drought and storm.
What heights of love, what depths of peace,
When fears are stilled, when strivings cease!
My Comforter, All in All,
Here in the love of Christ I stand.”
– lyrics from “In Christ Alone”